Philip M Glaessner, Ananya Gorrai, Amanda Rondinelli Ratigan, Gail Burack, Sneha Jacob, Patricia Whitley Williams, Roseanne Marone, Sunanda Gaur, Lawrence C Kleinman
To characterize the lived experience of persons living with HIV/AIDS (PLWHA) during the COVID-19 pandemic, we utilized an innovative survey to assess the experiences of 94 adult respondents receiving medical care and/or case management services from two Ryan White funded sites in New Brunswick, NJ, from May 2020 to November 2021. The Local Inventory of Needs and Knowledge-HIV (LINK-HIV) survey includes five indices and assesses overall and mental/emotional health of PLWHA. We demonstrate internal validity of the indices, describe relationships between indices and health outcomes, and characterize the health of this population. We identified specific unmet needs across the constructs of social determinants of health (SDOH) Needs, Stress due to unmet SDOH, Access to Healthcare, Stress due to COVID-19, and Person-Centered Primary Care. Respondents' self-reported health was suboptimal (47.8% reported better overall health, 40.4% reported better mental/emotional health), and associations were seen between responses to the five indices and self-reported health outcomes.