Mary Carol Barks, Claire Yballa, Alexandra Linker, Chau Amoeni, Gabrielle Cua, Malley Craig, Bridget Hein, Thomas May
Addressing these multi-faceted ethical challenges through targeted, trust-building strategies is essential to enhance the participation of Black individuals in health registries and clinical studies. This, in turn, can lead to more equitable representation in kidney research and more generalizable findings to reduce CKD disparities.
Sound scientific sample diversity will require attention to cultivating trust among populations underrepresented as biobank participants. While no particular group is the focus of this report, the observations presented may be particularly helpful for cultivating trust necessary for enrollment of underrepresented populations. Community engagement strategies indicate that such trust is built through relationships extending across the spectrum of biomedicine rather than focused exclusively on a particular research project. Central to these relationships are communication behaviors reflected in both research and clinical encounters. This 'brief research report' presents preliminary clinical research findings from a pilot analysis of return of genetic results conversations relevant to the cultivation of trust.