Children with Intellectual and Developmental Disabilities and Mental Health Challenges: Caregiver Familiarity with Clinical Services.

Although children with intellectual and developmental disabilities (IDD) more often experience mental health concerns, they do not always receive mental health services. This study examined the barrier of caregiver familiarity with services. Analyzing a statewide survey of 137 caregivers of children with IDD and mental health concerns, high percentages (35%-60%) were unfamiliar with common school-based child, community-based child, and (community-based) family mental health services. Especially concerning family services (e.g., family therapy, behavioral parent training, caregiver therapy), caregivers did not know what services to ask for or where to find them. Caregivers' service familiarity increased when children received a formal mental health diagnosis, but not when the child had an Individualized Education Program. Implications are discussed for research, policy, and practice.