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◆ NPJ genomic medicine2026-09-03

Environmentally responsible human genomic data governance: points for consideration.

Narcyz Ghinea, Gabrielle Samuel, Wendy Xin, Emma Bonser, Robert Cook-Deegan, Monica Ferrie, Christopher Gyngell, Margaret Otlowski, Alan Petersen, Bridget Pratt, Susie Roczo-Farkas, Ainsley J Newson

原始摘要(英文原文)· Original abstract
We introduce five points for integrating environmental ethics into human genomic data governance: (i) recognizing the ethical imperative to consider environmental impacts of human genomic data; (ii) fostering collective responsibility for environmental harms; (iii) prospectively assessing benefits and harms; (iv) anticipating barriers to integration of environmental ethics into genomic data governance; and (v) meaningfully engaging all interest-holders. These points will be useful to all involved in the genomic data ecosystem.
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Environmentally responsible human genomic data governance: points for consideration. — 科研速览 Science Skim