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◆ Journal of clinical epidemiology2026-09-04

A co-designed Participant Information and Consent Form was perceived as more accessible by ethnically diverse communities: lessons from community-based implementation.

Bianca Brijnath, Yen Nguyen

一句话结论 · In one sentence

Consent accessibility is both an ethical and methodological consideration. Co-design may help reduce avoidable participation barriers, although effects on recruitment and representativeness require further evaluation.

原始摘要(英文原文)· Original abstract
OBJECTIVE: To describe a co-designed Participant Information and Consent Form (PICF) developed to improve accessibility for ethnically diverse communities and consider implications for research representativeness. APPROACH: A generic PICF was redesigned with a consumer advisory group and researchers and piloted in community-based workshops. FINDINGS: Participants and facilitators perceived the revised PICF as easier to understand and more supportive of engagement with the consent process. Inaccessible consent materials may contribute to differential self-selection during recruitment. CONCLUSION: Consent accessibility is both an ethical and methodological consideration. Co-design may help reduce avoidable participation barriers, although effects on recruitment and representativeness require further evaluation.
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A co-designed Participant Information and Consent Form was perceived as more accessible by ethnically diverse communities: lessons from community-based implementation. — 科研速览 Science Skim