Bianca Brijnath, Yen Nguyen
Consent accessibility is both an ethical and methodological consideration. Co-design may help reduce avoidable participation barriers, although effects on recruitment and representativeness require further evaluation.
OBJECTIVE: To describe a co-designed Participant Information and Consent Form (PICF) developed to improve accessibility for ethnically diverse communities and consider implications for research representativeness.
APPROACH: A generic PICF was redesigned with a consumer advisory group and researchers and piloted in community-based workshops.
FINDINGS: Participants and facilitators perceived the revised PICF as easier to understand and more supportive of engagement with the consent process. Inaccessible consent materials may contribute to differential self-selection during recruitment.
CONCLUSION: Consent accessibility is both an ethical and methodological consideration. Co-design may help reduce avoidable participation barriers, although effects on recruitment and representativeness require further evaluation.